cCMVnet Study
Observational study of the management of infants with congenital CMV.
In set-up
Observational study of the management of infants with congenital CMV.
In set-up
The objective of this study is to inform us how children present with cCMV, what is the utility of different diagnostic tests, which treatments are commonly prescribed, what side effects do children experience and what is the outcome of treatment. Specific questions include:
This is an observational, prospective/retrospective multicentre, cohort study of children diagnosed with cCMV. This study will contribute to a wider study also recruiting participants in Europe and other countries worldwide led by Dr Daniel Blazquez-Gamero in Madrid, Spain. No investigations or treatment will be carried out that are not part of routine clinical practice. Infants with cCMV are routinely followed up from an infectious diseases, audiology, ophthalmology and neurodevelopmental perspective until approximately 6 years of age, or longer if there are ongoing issues. Some children will be retrospectively diagnosed with cCMV in later childhood. Recruitment can be from any centre that manages these patients and has agreed to participate in the study.
No samples are taken in this data collection and analysis study.